Hollywood-inspired
It never ceases to amaze me that there is a huge number of allergy-suffering children out there who love nothing more to cook despite their dietary restrictions. I know of so many EGID children, even...
View ArticleLost in Translation
As Mum to a child with additional health needs, you have to be prepared the minute you venture outside your front door. You don’t just carry with you the medicines, equipment and food items you need to...
View ArticleBest. Week. Ever.
Back at the end of March, G was lucky enough to attend the amazing Over The Wall sibling camp and had the experience of a lifetime. I knew just how much of a success that week away from home had been...
View ArticleCity Adventures in Lisbon
The first few days of our Portuguese adventures were spent in the capital city, Lisbon, where we enjoyed some great days out in what was a first visit for us, even though we know parts of the Algarve...
View ArticleRice Two-Ways
When we made the decision to go elemental in an attempt to bring about a reduction in M’s chronic symptoms, I never imagined that the reintroduction of foods would be as fraught and intensely stressful...
View ArticleFrom all angles
The last few months have been busy ones in all areas of our life, which I haven’t been shy in talking about, but the one aspect that I haven’t mentioned for quite some time is where we are health-wise...
View ArticleOn this Day
One of the things I enjoy about Facebook is the “On this Day” look back at the previous statuses you’ve posted on that day in years past, which is how I realised that today marks 4 years since the...
View ArticleNEAW 2017 – His illness does not define him
Our life experiences influence our view of the world that surrounds us. Good or bad, everything we do or see or hear or learn will affect our outlook on life, on whether we become individuals who see...
View ArticleBitter disappointment
Two years ago, M and I waved goodbye to G as she trekked off on the adventure that is Year 6 Camp and, as he had his NG-tube in place, we chatted about whether Year 6 camp was a possibility for him. I...
View ArticleA Brewing Storm
Yesterday a social media storm hit the EGID world, especially for those of us who are, or who have been, under the care of Great Ormond Street Hospital over the last few years. The reason? A story...
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